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QUESTIONNAIRES MEASURES

Strengths and Difficulties Questionnaire (SDQ) 

3-16 years olds. The SDQ is a brief behavioural screening questionnaire. It exists in several versions to meet the needs of researchers, clinicians and educationalists.  It is a self-report inventory behavioral screening questionnaire for children and adolescents ages 2 through 17 years old, developed by United Kingdom Child Psychiatrist Robert N. Goodman.  The SDQ is available online, and has been translated into more than 80 languages, including Spanish, Chinese, Russian and Portuguese.  The PhenX Toolkit uses SDQ as its child protocol for General Psychiatric Assessment and for Broad Psychopathology. 

Brief Assessment Checklist (BAC)

4-11 years.  BAC is a 20-item caregiver-report psychiatric rating scale designed to (1) Screen for and monitor clinically-meaningful mental difficulties experienced by children in foster, kinship, residential and adoptive care and (2) be safely used by children's agencies and health services without oversight by a child and adolescent mental health clinicians.

Behavioral Rating Inventory Executive Functioning (BRIEF)

5-18 years.  BRIEF is an assessment of executive function behaviors at home and at school for children and adolescents.  To assess the abilities of a broad range of abilities, learning difficulties, attention disorders, traumatic brain injuries, lead exposure, pervasive developmental disorders, depression, and other developmental neurological, psychiatric and medical conditions. 

Carer Questionnaire 

Parenting Stress Index - Short Form (PSI-SF)

Birth-12 years.  PI-SF identifies parent-child problem areas quickly.  The PSI-SF is an abbreviated version of the full-length PSI-4.  36 items are divided into 3 domains:  Parental Distress, Parent-Child Dysfunctional Interaction and Difficult Child, which combine to form a Total Stress Scale.  This form contains everything you need for administering the measure and for scoring and profiling results. It allows primary health care providers to identify families in need of follow-up services and is ideal for use in schools, mental health clinics and research. 

Pediatric Quality of Life Inventory (PEDS-QL) 

2-18 years.  PedsQL (Children's Hospital and Health Center, San Diego, California) is a modular instrument for measuring health-related quality of life (HRQOL) in children and adolescents. The PedsQL 4.0 Generic Core Scales are multidimensional child self-report and parent proxy-report scales developed as the generic core measure to be integrated with the PedsQL Disease-Specific Modules. The PedsQL 4.0 Generic Core Scales consist of 23 items applicable for healthy school and community populations, as well as pediatric populations with acute and chronic health conditions. click here for more information

Capability measure for Adults (ICECAP-A) 

18+years.  ICECAP-A is a measure of capability for the general adult population in economic evaluation.   It focues on wellbeing defined in a broader sense, rather than health.  It covers attributes of wellbeing that were found to be important to adults in the UK.  It comprises of 5 attributes, attachment, stability, achievement, enjoyment and autonomy.

EQ-5D Quality of Life Measure

EQ-5D measures generic health status, widely used in population health surveys, clinical studies and economic evaluation. Components Health State and Evaluation.  5 Dimensions (5D): mobility, self-care, usual activities, pain/discomfort, anxiety/depression. 

Resource use

Bespoke data collection forms will be developed throughout Phase I and tested in Phase II (Feasibility). In Phase 1 the economic component will utilise data from the qualitative interviews, focus groups and PPCI groups to develop a conceptual model which captures the DDP intervention at each of the three alternative service contexts as well as capturing the service as usual delivery, what that entails at each site and referral pathways to additional services. The aim is to identify the appropriate resource use items and data requirements at each site/service context, explore the existing data systems, developed data collection forms/tools and establish a process for extraction and collection of data prospectively in for the Phase II feasibility trial. 

Child Health Utility Instrument (CHU-9D)

7-17 years.  CHU-9D is a paediatric generic preference-based measure of health-realted quality of life suitability.  It consists of a short questionnaire and a set of preference weights using general population values.  The questionnaire has 9 questions with 5 responses levels per quesetion and is self-completed by the child (or proxy completed for younger children).  CHU-9D allows the analyst to obtain quality adjusted life years (QALYs) directly for use in cost utility analysis.    

INTERVIEW MEASURES 

Reactive Disorder and Disinhibited Social Engagement Disorder Assessment (RaDA)

RaDA is a semi-structured interview for assessing the symptoms of Reactive Attachment Disorder (RAD) and Disinhibited Social Engagement Disorder (DSED). RAD is a condition in which the child is unable to establish healthy attachments, the child feels unsafe and alone as a result of disruption in their early life.  DSED is when a child may actively approach and interact with unfamiliar adults. 

This is My Child (TIMC)

TIMC investigates the carers' long-term view of their relationship with the child.

Middle Years Development Instrument (MDI)

6-12 years.  MDI assesses the children's wellbeing at home and at school. It measures intrapersonal competencies, thoughts, feelings and experiences.   

My Social World Game 

4 years+.  The My World Game is a tool that explores the social world of participants. The children are asked a series of open question about the people who matter to them and the kind of support that they receive from them. These realtionships are explored using a visual representation of the 'world'  where icons representing the people can be placed. No literacy skills are needed.

PHONE CALL / ONLINE QUESTIONNAIRE

Likert scales: parental stress; child emotional regulation; parent-child relationship; child behaviour 

Likert scales are a psychological measurement device that is used to gauge attitudes, values, and opinions. It functions by having a person complete a questionnaire that requires them to indicate the extent to which they agree or disagree with a series of statements.

OBSERVATION / VIDEO RATING 

Waiting Room Observation (WRO)

5-12 years. WRO is a brief standardised observational schedule for Reactive Attachment Disorder (RAD) in school-age children to aid clinician recognition of these behaviours. Design: A new structured observational schedule for symptoms of RAD was developed using unstructured observation of children in a clinic waiting room setting. The measure's ability to discriminate between a sample of children with RAD and a normative sample was established by comparing scores in these two groups. Method: Children aged 5-8 years (n = 77 [38 RAD cases and 39 controls]) were observed with their primary caregiver in a standardised waiting room setting. A structured observational tool was developed that tested the reliability, sensitivity and specificity of each item. Results: The schedule has good internal consistency (0.75). The individual items on the observational schedule were predominantly highly discriminatory between cases and comparisons, showing both reasonable sensitivity and excellent specificity. Certain questions were dropped due to poor discrimination and/or poor inter-rater reliability. Conclusion: The 10-item observational schedule for RAD in school-age children provides a promising tool for assessment, although further research will be required to evaluate its ability to discriminate between RAD and other disorders. 

Emotional Availability Scales (EA Scales)

Birth-14 years.  EA Scales measures the quality of parent-child or adult-child interactions.  Emotional availability refers to "the adult's 'receptive presence' to the child's emotional signals". Consists of 6 dimensions of the emotional availability of the parent/carer towards the child and of the child toward the parent/carer.  Parental dimensions are sensitivity, structuring, nonintrusiveness, and nonhostility. Child's dimensions are the child's responsiveness to the parent and the child's involvement of the parent. 

ROUTINE DATA 

Adverse Events / Pre-Care History