We are well aware of the importance of engagement with end users and external bodies. Through fundraising/public engagement events, we provide knowledge to patient groups/charities, which will help raise awareness of the disease. We are active members of a fundraising committee and manage Helgason Lab social media accounts (Facebook, Instagram, Twitter).
In terms of research dissemination in relation to our recent paper published in Nature Medicine: University of Glasgow had a press release and a unique video was made for social media. On Twitter, it was viewed ~10.000 times and seen by >40.000 people. On Instagram, the story received 7344 views on the first slide. On Facebook, the video received >37.000 views and was shared >420 times.