21 Nov 2012: Sociology Seminar
Issued: Thu, 13 Sep 2012 17:42:00 BST
Biographical Disruption and Delays in Diagnosis: The Barriers Facing Adults with Motor Neurone Disease
Dr Jo Ferrie (SCDR, University of Glasgow)
4.00-5.30pm, Room 916, Adam Smith Building
This paper builds up on the notion of biographical disruption (Bury, 1982) as applied to chronic illness. Here Bury discussed the importance of rebuilding or reconstructing a narrative of the self that incorporates the reality of chronic illness and the disruption this has had on anticipated opportunities and experiences. This was further developed by Locock et al (2009) and applied to MND (that can behave both as a chronic and as a terminal illness). Locock et al argued for the notion of biographical abruption where the diagnosis of a terminal condition leads to an ending where reconstructing a future is severely impeded. Drawing on results from a 2 year qualitative study, we challenge the notion of abruption. Getting a diagnosis of MND can take considerable time (up to 18 months), can involve multiple practitioners, multiple clinics or hospitals, multiple tests and these combine to disrupt a biographical narrative to such an extent that it impairs the ability to reconstruct an idea of self after diagnosis. We will therefore explore to what extent the experience of waiting for a diagnosis, rather than the reaction to the diagnosis itself, has on the severity of biographical disruption.
Any enquiries about the seminar series can be addressed to: Andrew.Smith.email@example.com