The 2017 / 2018 ‘Don’t Delay, Connect Today’ is a EULAR Campaign that, for the first time, engages all three EULAR pillars – patient organisations (PARE), health professional associations and scientific communities. Rheumatic and musculoskeletal diseases (RMDs) often receive delayed or no diagnosis.
As many of us know, early diagnosis is key to preventing further damage, but a diagnosis of RMDs is often delayed or is never given.This is often due to a lack of awareness, reducing peoples' quality of life and affecting physical abilities. The EULAR Campaign aims to raise awareness of the importance of early diagnosis in preventing further damage to those living with RMDs, and to encourage timely access to evidence-based treatment.
A few months ago a group of researchers from the University of Glasgow working on a variety of rheumatic and musculoskeletal diseases took on the challenge of the Hebridean Cycle Way to raise money for the National Rheumatoid Arthritis Society (NRAS). NRAS provides incredible support to people from all around the UK affected by rheumatoid arthritis. The aim of this campaign is to raise awareness of the importance of early diagnosis for diseases like rheumatoid arthritis. The group cycled 185 miles in 4 days across 10 islands via 6 causeways and 2 ferries. They actively promoted the European League Against Rheumatism's (EULARs) 'Don't Delay Connect Today' campaign along the way and have raised £2,872.77 so far. It's not to late to sponsor the team tho, just hop over to their Just Giving page to send them a congratulations and a donation.
Over 35 individuals from across the IMID-Bio-UK Network gathered in Glasgow to review, discuss and shape the strategic direction of IMID-Bio-UK. Hosted at the Radisson Blu Hotel, in the rather quirky King Tut Room, each of the clinical trials to be integrated within the IMID-Bio-UK tranSMART system were represented, along with representatives from both our industry and charity partners. A follow up meeting will be held in the coming months to keep the momentum going on our project.