2024

Ward, L.A. et al. (2024) Population-based cancer incidence and mortality rates and ratios among adults with intellectual disabilities in Scotland. medRxiv, (doi: 10.1101/2024.01.18.23300433) (Unpublished)

2022

Cooper, S.-A. et al. (2022) Cohort profile: Scotland’s record-linkage e-cohorts of people with intellectual disabilities, and autistic people (SCIDA). BMJ Open, 12, e057230. (doi: 10.1136/bmjopen-2021-057230) (PMID:35568493) (PMCID:PMC9109103)

Hughes-Mccormack, L. et al. (2022) Rates, causes and predictors of all-cause and avoidable mortality in 163,686 children and young people with and without intellectual disabilities: A record linkage national cohort study. BMJ Open, 12, e061636. (doi: 10.1136/bmjopen-2022-061636) (PMID:36113944) (PMCID:PMC9486341)

2021

Truesdale, M. et al. (2021) Respiratory-associated deaths in people with intellectual disabilities: a systematic review and meta-analysis. BMJ Open, 11(7), e043658. (doi: 10.1136/bmjopen-2020-043658) (PMID:34261677)

Sutherland, L., McGarty, A.M. , Melville, C.A. and Hughes-McCormack, L.A. (2021) Correlates of physical activity in children and adolescents with intellectual disabilities: a systematic review. Journal of Intellectual Disability Research, 65(5), pp. 405-436. (doi: 10.1111/jir.12811) (PMID:33590605)

Hughes-Mccormack, L., Greenlaw, N. , Mcskimming, P., Mccowan, C. , Ross, K., Allan, L., Henderson, A. , Melville, C. , Morrison, J. and Cooper, S.-A. (2021) Changes over time in the management of long-term conditions in primary health-care for adults with intellectual disabilities, and the health-care inequalities gap. Journal of Applied Research in Intellectual Disabilities, 34(2), pp. 634-647. (doi: 10.1111/jar.12833) (PMID:33283349)

2020

Kinnear, D. , Rydzewska, E. , Dunn, K., Hughes-McCormack, L., Melville, C. , Henderson, A. and Cooper, S.-A. (2020) The relative influence of intellectual disabilities and autism on sensory impairments and physical disability: a whole‐country cohort of 5.3 million children and adults. Journal of Applied Research in Intellectual Disabilities, 33(5), pp. 1059-1068. (doi: 10.1111/jar.12728) (PMID:32187783)

Hughes-Mccormack, L. A., McGowan, R., Pell, J. P. , Mackay, D. , Henderson, A. , O'Leary, L. and Cooper, S.-A. (2020) Birth incidence, deaths, and hospitalisation of children and young people with Down syndrome, 1990-2015: birth cohort study. BMJ Open, 10, e033770. (doi: 10.1136/bmjopen-2019-033770) (PMID:32241786)

2019

Rydzewska, E. , Hughes-McCormack, L., Gillberg, C. , Henderson, A. , MacIntyre, C., Rintoul, J. and Cooper, S.-A. (2019) Age at identification, prevalence and general health of children with autism: observational study of a whole country population. BMJ Open, 9, e025904. (doi: 10.1136/bmjopen-2018-025904) (PMID:31289063) (PMCID:PMC6629388)

Kinnear, D. , Rydzewska, E. , Dunn, K., Hughes-McCormack, L. A., Melville, C. , Henderson, A. and Cooper, S.-A. (2019) The relative influence of intellectual disabilities and autism on mental and general health in Scotland: a cross-sectional study of a whole country of 5.3 million children and adults. BMJ Open, 9(8), e029040. (doi: 10.1136/bmjopen-2019-029040) (PMID:31462474)

Rydzewska, E. , Hughes-McCormack, L. A., Gillberg, C. , Henderson, A. , MacIntyre, C., Rintoul, J. and Cooper, S.-A. (2019) Prevalence of sensory impairments, physical and intellectual disabilities, and mental health in children and young people with self/proxy-reported autism: observational study of a whole country population. Autism, 23(5), pp. 1201-1209. (doi: 10.1177/1362361318791279) (PMID:30328695)

Ward, L. M. , Cooper, S.-A. , Hughes-Mccormack, L., Macpherson, L. and Kinnear, D. (2019) Oral health of adults with intellectual disabilities: A systematic review. Journal of Intellectual Disability Research, 63(11), pp. 1359-1378. (doi: 10.1111/jir.12632) (PMID:31119825)

Kinnear, D. , Rydzewska, E. , Dunn, K., Hughes-Mccormack, L., Melville, C. , Henderson, A. and Cooper, S.-A. (2019) The Relative Influence Of Intellectual Disabilities and Autism on Mental and General Health: A Cross-Sectional Study of a Whole Country of 5.3 Million Children and Adults. 2019 Gatlinburg Conference, San Antonio, TX, USA, 03-05 Apr 2019.

Rydzewska, E. , Hughes-Mccormack, L. A., Gillberg, C. , Henderson, A. , MacIntyre, C., Rintoul, J. and Cooper, S.-A. (2019) General health of adults with autism spectrum disorders - a whole country population cross-sectional study. Research in Autism Spectrum Disorders, 60, pp. 59-66. (doi: 10.1016/j.rasd.2019.01.004)

2018

O'Leary, L., Hughes-Mccormack, L., Dunn, K. and Cooper, S.-A. (2018) Early death and causes of death of people with Down syndrome: a systematic review. Journal of Applied Research in Intellectual Disabilities, 31(5), pp. 687-708. (doi: 10.1111/jar.12446) (PMID:29573301)

Rydzewska, E. , Hughes-McCormack, L. A., Gillberg, C. , Henderson, A. , MacIntyre, C., Rintoul, J. and Cooper, S.-A. (2018) Prevalence of long-term health conditions in adults with autism: observational study of a whole country population. BMJ Open, 8(8), e023945. (doi: 10.1136/bmjopen-2018-023945) (PMID:30173164) (PMCID:PMC6120653)

Hughes-Mccormack, L., Rydzewska, E. , Henderson, A. , MacIntyre, C., Rintoul, J. and Cooper, S.-A. (2018) Prevalence and General Health Status of People with Intellectual Disabilities in Scotland: A Total Population Study. Fifth International IASSIDD Europe Congress, Athens, Greece, 17-20 July 2018. (doi: 10.1111/jar.12485)

Hughes-Mccormack, L., Rydzewska, E. , Henderson, A. , MacIntyre, C., Rintoul, J. and Cooper, S.-A. (2018) Prevalence of Mental Health Conditions and Relationship with General Health in a Whole Country Population of 26,349 People with Intellectual Disabilities, Compared with the General Population. Fifth International IASSIDD Europe Congress, Athens, Greece, 17-20 July 2018. (doi: 10.1111/jar.12485)

Rydzewska, E. , Hughes-Mccormack, L., Henderson, A. and Cooper, S.-A. (2018) Adults with Autism – Observational Study of Comorbidity in a Whole Country Population. Fifth International IASSIDD Europe Congress, Athens, Greece, 17-20 July 2018. (doi: 10.1111/jar.12485)

Rydzewska, E. , Hughes-Mccormack, L., Henderson, A. and Cooper, S.-A. (2018) Adults with Autism – Observational Study of General Health Status in a Whole Country Population. Fifth International IASSIDD Europe Congress, Athens, Greece, 17-20 July 2018. (doi: 10.1111/jar.12485)

Rydzewska, E. , Hughes-Mccormack, L., Henderson, A. and Cooper, S.-A. (2018) Children and Young People with Autism–Observational Study of Comorbidity in a Whole Country Population. Fifth International IASSIDD Europe Congress, Athens, Greece, 17-20 July 2018. (doi: 10.1111/jar.12485)

Rydzewska, E. , Hughes-Mccormack, L., Henderson, A. and Cooper, S.-A. (2018) Children and Young People with Autism–Observational Study of General Health Status in a Whole Country Population. Fifth International IASSIDD Europe Congress, Athens, Greece, 17-20 July 2018. (doi: 10.1111/jar.12485)

O'Leary, L., Cooper, S.-A. and Hughes-Mccormack, L. (2018) Early death and causes of death of people with intellectual disabilities: a systematic review. Journal of Applied Research in Intellectual Disabilities, 31(3), pp. 325-342. (doi: 10.1111/jar.12417) (PMID:28984406)

Cooper, S.-A. et al. (2018) Management and prevalence of long-term conditions in primary health care for adults with intellectual disabilities compared with the general population: a population-based cohort study. Journal of Applied Research in Intellectual Disabilities, 31(S1), pp. 68-81. (doi: 10.1111/jar.12386) (PMID:28730746)

Dunn, K., Hughes-Mccormack, L. and Cooper, S.-A. (2018) Hospital admissions for physical health conditions for people with intellectual disabilities: systematic review. Journal of Applied Research in Intellectual Disabilities, 31(S1), pp. 1-10. (doi: 10.1111/jar.12360) (PMID:28467010)

Melville, C.A. , McGarty, A. , Harris, L., Hughes-Mccormack, L., Baltzer, M. , McArthur, L., Morrison, J. , Allan, L. and Cooper, S.-A. (2018) A population-based, cross-sectional study of the prevalence and correlates of sedentary behaviour of adults with intellectual disabilities. Journal of Intellectual Disability Research, 62(1), pp. 60-71. (doi: 10.1111/jir.12454) (PMID:29214701)

Hughes-Mccormack, L. A., Rydzewska, E. , Henderson, A. , MacIntyre, C., Rintoul, J. and Cooper, S.-A. (2018) Prevalence and general health status of people with intellectual disabilities in Scotland: a total population study. Journal of Epidemiology and Community Health, 72(1), pp. 78-85. (doi: 10.1136/jech-2017-209748) (PMID:29070675)

2017

Hughes-McCormack, L. A., Rydzewska, E. , Henderson, A. , MacIntyre, C., Rintoul, J. and Cooper, S.-A. (2017) Prevalence of mental health conditions and relationship with general health in a whole-country population of people with intellectual disabilities compared with the general population. BJPsych Open, 3(5), pp. 243-248. (doi: 10.1192/bjpo.bp.117.005462) (PMID:29034100) (PMCID:PMC5620469)

2016

Hughes-McCormack, L., Rydzewska, E. , Henderson, A. and Cooper, S.-A. (2016) The health of Scotland’s 26,349 people with intellectual disabilities. 2016 IASSIDD World Congress, Melbourne, Australia, 14-19 Aug 2016. p. 685. (doi: 10.1111/jir.12305)

Rydzewska, E. , Hughes-Mccormack, L., Henderson, A. and Cooper, S.-A. (2016) Health of people with autism: findings from Scotland's 2011 census. 2016 IASSIDD World Congress, Melbourne, Australia, 14-19 Aug 2016. p. 731. (doi: 10.1111/jir.12305)

Dunn, K., Hughes-McCormack, L. and Cooper, S.-A. (2016) Hospital admissions for people with intellectual disabilities: systematic review. 2016 IASSIDD World Congress, Melbourne, Australia, 14-19 Aug 2016. p. 779. (doi: 10.1111/jir.12306)

Hughes-Mccormack, L. et al. (2016) Quality of primary health care of 5,000 people with intellectual disabilities in Scotland. 2016 IASSIDD World Congress, Melbourne, Australia, 14-19 Aug 2016. p. 685. (doi: 10.1111/jir.12305)

O'Leary, L., Hughes-McCormack, L. and Cooper, S.-A. (2016) Life expectancy and causes of death of people with intellectual disabilities: a systematic review. 2016 IASSIDD World Congress, Melbourne, Australia, 14-19 Aug 2016. p. 804. (doi: 10.1111/jir.12306)

2013

Hughes-Mccormack, L. A., Banks, P. and Terras, M. M. (2013) Secondary school transition for children with special educational needs: a literature review. Support for Learning, 28(1), pp. 24-34. (doi: 10.1111/1467-9604.12012)

Articles

Ward, L.A. et al. (2024) Population-based cancer incidence and mortality rates and ratios among adults with intellectual disabilities in Scotland. medRxiv, (doi: 10.1101/2024.01.18.23300433) (Unpublished)

Cooper, S.-A. et al. (2022) Cohort profile: Scotland’s record-linkage e-cohorts of people with intellectual disabilities, and autistic people (SCIDA). BMJ Open, 12, e057230. (doi: 10.1136/bmjopen-2021-057230) (PMID:35568493) (PMCID:PMC9109103)

Hughes-Mccormack, L. et al. (2022) Rates, causes and predictors of all-cause and avoidable mortality in 163,686 children and young people with and without intellectual disabilities: A record linkage national cohort study. BMJ Open, 12, e061636. (doi: 10.1136/bmjopen-2022-061636) (PMID:36113944) (PMCID:PMC9486341)

Truesdale, M. et al. (2021) Respiratory-associated deaths in people with intellectual disabilities: a systematic review and meta-analysis. BMJ Open, 11(7), e043658. (doi: 10.1136/bmjopen-2020-043658) (PMID:34261677)

Sutherland, L., McGarty, A.M. , Melville, C.A. and Hughes-McCormack, L.A. (2021) Correlates of physical activity in children and adolescents with intellectual disabilities: a systematic review. Journal of Intellectual Disability Research, 65(5), pp. 405-436. (doi: 10.1111/jir.12811) (PMID:33590605)

Hughes-Mccormack, L., Greenlaw, N. , Mcskimming, P., Mccowan, C. , Ross, K., Allan, L., Henderson, A. , Melville, C. , Morrison, J. and Cooper, S.-A. (2021) Changes over time in the management of long-term conditions in primary health-care for adults with intellectual disabilities, and the health-care inequalities gap. Journal of Applied Research in Intellectual Disabilities, 34(2), pp. 634-647. (doi: 10.1111/jar.12833) (PMID:33283349)

Kinnear, D. , Rydzewska, E. , Dunn, K., Hughes-McCormack, L., Melville, C. , Henderson, A. and Cooper, S.-A. (2020) The relative influence of intellectual disabilities and autism on sensory impairments and physical disability: a whole‐country cohort of 5.3 million children and adults. Journal of Applied Research in Intellectual Disabilities, 33(5), pp. 1059-1068. (doi: 10.1111/jar.12728) (PMID:32187783)

Hughes-Mccormack, L. A., McGowan, R., Pell, J. P. , Mackay, D. , Henderson, A. , O'Leary, L. and Cooper, S.-A. (2020) Birth incidence, deaths, and hospitalisation of children and young people with Down syndrome, 1990-2015: birth cohort study. BMJ Open, 10, e033770. (doi: 10.1136/bmjopen-2019-033770) (PMID:32241786)

Rydzewska, E. , Hughes-McCormack, L., Gillberg, C. , Henderson, A. , MacIntyre, C., Rintoul, J. and Cooper, S.-A. (2019) Age at identification, prevalence and general health of children with autism: observational study of a whole country population. BMJ Open, 9, e025904. (doi: 10.1136/bmjopen-2018-025904) (PMID:31289063) (PMCID:PMC6629388)

Kinnear, D. , Rydzewska, E. , Dunn, K., Hughes-McCormack, L. A., Melville, C. , Henderson, A. and Cooper, S.-A. (2019) The relative influence of intellectual disabilities and autism on mental and general health in Scotland: a cross-sectional study of a whole country of 5.3 million children and adults. BMJ Open, 9(8), e029040. (doi: 10.1136/bmjopen-2019-029040) (PMID:31462474)

Rydzewska, E. , Hughes-McCormack, L. A., Gillberg, C. , Henderson, A. , MacIntyre, C., Rintoul, J. and Cooper, S.-A. (2019) Prevalence of sensory impairments, physical and intellectual disabilities, and mental health in children and young people with self/proxy-reported autism: observational study of a whole country population. Autism, 23(5), pp. 1201-1209. (doi: 10.1177/1362361318791279) (PMID:30328695)

Ward, L. M. , Cooper, S.-A. , Hughes-Mccormack, L., Macpherson, L. and Kinnear, D. (2019) Oral health of adults with intellectual disabilities: A systematic review. Journal of Intellectual Disability Research, 63(11), pp. 1359-1378. (doi: 10.1111/jir.12632) (PMID:31119825)

Rydzewska, E. , Hughes-Mccormack, L. A., Gillberg, C. , Henderson, A. , MacIntyre, C., Rintoul, J. and Cooper, S.-A. (2019) General health of adults with autism spectrum disorders - a whole country population cross-sectional study. Research in Autism Spectrum Disorders, 60, pp. 59-66. (doi: 10.1016/j.rasd.2019.01.004)

O'Leary, L., Hughes-Mccormack, L., Dunn, K. and Cooper, S.-A. (2018) Early death and causes of death of people with Down syndrome: a systematic review. Journal of Applied Research in Intellectual Disabilities, 31(5), pp. 687-708. (doi: 10.1111/jar.12446) (PMID:29573301)

Rydzewska, E. , Hughes-McCormack, L. A., Gillberg, C. , Henderson, A. , MacIntyre, C., Rintoul, J. and Cooper, S.-A. (2018) Prevalence of long-term health conditions in adults with autism: observational study of a whole country population. BMJ Open, 8(8), e023945. (doi: 10.1136/bmjopen-2018-023945) (PMID:30173164) (PMCID:PMC6120653)

O'Leary, L., Cooper, S.-A. and Hughes-Mccormack, L. (2018) Early death and causes of death of people with intellectual disabilities: a systematic review. Journal of Applied Research in Intellectual Disabilities, 31(3), pp. 325-342. (doi: 10.1111/jar.12417) (PMID:28984406)

Cooper, S.-A. et al. (2018) Management and prevalence of long-term conditions in primary health care for adults with intellectual disabilities compared with the general population: a population-based cohort study. Journal of Applied Research in Intellectual Disabilities, 31(S1), pp. 68-81. (doi: 10.1111/jar.12386) (PMID:28730746)

Dunn, K., Hughes-Mccormack, L. and Cooper, S.-A. (2018) Hospital admissions for physical health conditions for people with intellectual disabilities: systematic review. Journal of Applied Research in Intellectual Disabilities, 31(S1), pp. 1-10. (doi: 10.1111/jar.12360) (PMID:28467010)

Melville, C.A. , McGarty, A. , Harris, L., Hughes-Mccormack, L., Baltzer, M. , McArthur, L., Morrison, J. , Allan, L. and Cooper, S.-A. (2018) A population-based, cross-sectional study of the prevalence and correlates of sedentary behaviour of adults with intellectual disabilities. Journal of Intellectual Disability Research, 62(1), pp. 60-71. (doi: 10.1111/jir.12454) (PMID:29214701)

Hughes-Mccormack, L. A., Rydzewska, E. , Henderson, A. , MacIntyre, C., Rintoul, J. and Cooper, S.-A. (2018) Prevalence and general health status of people with intellectual disabilities in Scotland: a total population study. Journal of Epidemiology and Community Health, 72(1), pp. 78-85. (doi: 10.1136/jech-2017-209748) (PMID:29070675)

Hughes-McCormack, L. A., Rydzewska, E. , Henderson, A. , MacIntyre, C., Rintoul, J. and Cooper, S.-A. (2017) Prevalence of mental health conditions and relationship with general health in a whole-country population of people with intellectual disabilities compared with the general population. BJPsych Open, 3(5), pp. 243-248. (doi: 10.1192/bjpo.bp.117.005462) (PMID:29034100) (PMCID:PMC5620469)

Hughes-Mccormack, L. A., Banks, P. and Terras, M. M. (2013) Secondary school transition for children with special educational needs: a literature review. Support for Learning, 28(1), pp. 24-34. (doi: 10.1111/1467-9604.12012)

Conference or Workshop Item

Kinnear, D. , Rydzewska, E. , Dunn, K., Hughes-Mccormack, L., Melville, C. , Henderson, A. and Cooper, S.-A. (2019) The Relative Influence Of Intellectual Disabilities and Autism on Mental and General Health: A Cross-Sectional Study of a Whole Country of 5.3 Million Children and Adults. 2019 Gatlinburg Conference, San Antonio, TX, USA, 03-05 Apr 2019.

Hughes-Mccormack, L., Rydzewska, E. , Henderson, A. , MacIntyre, C., Rintoul, J. and Cooper, S.-A. (2018) Prevalence and General Health Status of People with Intellectual Disabilities in Scotland: A Total Population Study. Fifth International IASSIDD Europe Congress, Athens, Greece, 17-20 July 2018. (doi: 10.1111/jar.12485)

Hughes-Mccormack, L., Rydzewska, E. , Henderson, A. , MacIntyre, C., Rintoul, J. and Cooper, S.-A. (2018) Prevalence of Mental Health Conditions and Relationship with General Health in a Whole Country Population of 26,349 People with Intellectual Disabilities, Compared with the General Population. Fifth International IASSIDD Europe Congress, Athens, Greece, 17-20 July 2018. (doi: 10.1111/jar.12485)

Rydzewska, E. , Hughes-Mccormack, L., Henderson, A. and Cooper, S.-A. (2018) Adults with Autism – Observational Study of Comorbidity in a Whole Country Population. Fifth International IASSIDD Europe Congress, Athens, Greece, 17-20 July 2018. (doi: 10.1111/jar.12485)

Rydzewska, E. , Hughes-Mccormack, L., Henderson, A. and Cooper, S.-A. (2018) Adults with Autism – Observational Study of General Health Status in a Whole Country Population. Fifth International IASSIDD Europe Congress, Athens, Greece, 17-20 July 2018. (doi: 10.1111/jar.12485)

Rydzewska, E. , Hughes-Mccormack, L., Henderson, A. and Cooper, S.-A. (2018) Children and Young People with Autism–Observational Study of Comorbidity in a Whole Country Population. Fifth International IASSIDD Europe Congress, Athens, Greece, 17-20 July 2018. (doi: 10.1111/jar.12485)

Rydzewska, E. , Hughes-Mccormack, L., Henderson, A. and Cooper, S.-A. (2018) Children and Young People with Autism–Observational Study of General Health Status in a Whole Country Population. Fifth International IASSIDD Europe Congress, Athens, Greece, 17-20 July 2018. (doi: 10.1111/jar.12485)

Hughes-McCormack, L., Rydzewska, E. , Henderson, A. and Cooper, S.-A. (2016) The health of Scotland’s 26,349 people with intellectual disabilities. 2016 IASSIDD World Congress, Melbourne, Australia, 14-19 Aug 2016. p. 685. (doi: 10.1111/jir.12305)

Rydzewska, E. , Hughes-Mccormack, L., Henderson, A. and Cooper, S.-A. (2016) Health of people with autism: findings from Scotland's 2011 census. 2016 IASSIDD World Congress, Melbourne, Australia, 14-19 Aug 2016. p. 731. (doi: 10.1111/jir.12305)

Dunn, K., Hughes-McCormack, L. and Cooper, S.-A. (2016) Hospital admissions for people with intellectual disabilities: systematic review. 2016 IASSIDD World Congress, Melbourne, Australia, 14-19 Aug 2016. p. 779. (doi: 10.1111/jir.12306)

Hughes-Mccormack, L. et al. (2016) Quality of primary health care of 5,000 people with intellectual disabilities in Scotland. 2016 IASSIDD World Congress, Melbourne, Australia, 14-19 Aug 2016. p. 685. (doi: 10.1111/jir.12305)

O'Leary, L., Hughes-McCormack, L. and Cooper, S.-A. (2016) Life expectancy and causes of death of people with intellectual disabilities: a systematic review. 2016 IASSIDD World Congress, Melbourne, Australia, 14-19 Aug 2016. p. 804. (doi: 10.1111/jir.12306)