Publications

Publications

Our academics have recently been involved in several publications relating to palliative and end of life care around the world:

Pringle, J., Johnston, B. and Buchanan, D. (2015) Dignity and patient-centred care for people with palliative care needs in the acute hospital setting: a systematic review. Palliative Medicine, 29(8), pp. 675-694. (doi:10.1177/0269216315575681) (PMID:25802322)

Richards, N., Warren, L. and Gott, M. (2012) The challenge of creating ‘alternative’ images of ageing: lessons from a project with older women. Journal of Aging Studies, 26(1), pp. 65-78. (doi:10.1016/j.jaging.2011.08.001)

Inbadas, H. (2013) Facing the Challenges of Spiritual Care in Indian Palliative Care. In: 20th International Conference of Indian Association of Palliative Care, Bengaluru, India, 8-10 Feb 2013,

Ingleton, C., Gardiner, C., Seymour, J.E., Richards, N. and Gott, M. (2013) Exploring education and training needs among the palliative care workforce. BMJ Supportive and Palliative Care, 3(2), pp. 207-212. (doi:10.1136/bmjspcare-2012-000233) (PMID:24644570)

Whitelaw, A., Smart, E., Kopela, J., Gibson, T. and King, V. (2011) Developing social marketing capacity to address health issues. Health Education, 111(4), pp. 319-331. (doi:10.1108/09654281111144274)

Springett, J., Whitelaw, A. and Dooris, M. (2010) Sustainable development, equity and health-time to get radical. Critical Public Health, 20(3), pp. 275-280. (doi:10.1080/09581596.2010.502932)

Zaman, S. (2009) Ladies without lamps: nurses in Bangladesh. Qualitative Health Research, 19(3), pp. 366-374. (doi:10.1177/1049732309331876) (PMID:19224879)

Inbadas, H. (2007) Principles of Palliative Care in Deaddiction Programmes [Invited Talk]. In: 11th National Conference of Christian Agencies to Combat Substance Abuse Network, Christian Medical Association of India, Kolkata, India, 27 Apr 2007,

Clark, D. and Centeno, C. (2014) Historical perspectives on end-of-life care in global context: Europe. In: Lazenby, M., McCorkle, R. and Sulmasy, D. P. (eds.) Safe Passage: A Global and Spiritual Sourcebook for Care at the End of Life. Oxford University Press: Oxford, pp. 36-47. ISBN 9780199914630

Tolson, D., Watchman, K., Richards, N., Brown, M., Jackson, G., Dalrymple, A. and Henderson, J. (2015) Enhanced sensory day care: developing a new model of day care for people in the advanced stage of dementia: a pilot study. Project Report. Alzheimer Scotland Centre for Policy and Practice, Hamilton.

Isles, C., Robertson, S., Donaldson, K. and Clark, D. (2011) The challenges of renal replacement therapy and renal palliative care in the elderly. Journal of the Royal College of Physicians of Edinburgh, 41(3), pp. 238-243. (doi:10.4997/JRCPE.2011.313)

Clark, D. (2012) Palliative care in the global context: understanding policies to support end-of-life care. In: Cohen, J. and Deliens, L. (eds.) A Public Health Perspective on End of Life Care. Oxford University Press, pp. 215-226. ISBN 9780199599400

Inbadas, H. (2013) Ethical Issues in Palliative Care: Advance Directives - Are They Feasible in Developing Countries? [Invited Talk]. In: 20th International Conference of Indian Association of Palliative Care, Bengaluru, India, 8-10 Feb 2013,

Ward, S., Gott, M., Gardiner, C., Cobb, M., Richards, N. and Ingleton, C. (2012) Economic analysis of potentially avoidable hospital admissions in patients with palliative care needs. Progress in Palliative Care, 20(3), pp. 147-153. (doi:10.1179/1743291X12Y.0000000018)

Zaman, S. (2013) The hospital as a microcosm of society: ethnography of a Bangladesh hospital. Anthropologie et Sociétés, 37(3), p. 45. (doi:10.7202/1024078ar)

Inbadas, H. , Zaman, S., Whitelaw, A. and Clark, D. (2016) Palliative care declarations: mapping a new form of intervention. Journal of Pain and Symptom Management, 52(3), e7-e15. (doi:10.1016/j.jpainsymman.2016.05.009) (PMID:27401509) (PMCID:PMC5026679)

Carrasco, J. M., Lynch, T. J., Garralda, E., Woitha, K., Elsner, F., Filbet, M., Ellershaw, J. E., Clark, D. and Centeno, C. (2015) Palliative care medical education in European Universities: a descriptive study and numerical scoring system proposal for assessing educational development. Journal of Pain and Symptom Management, 50(4), 516-523.e2. (doi:10.1016/j.jpainsymman.2015.04.019) (PMID:26025273)

Zaman, S., Selim, N. and Joarder, T. (2013) McDonaldization without a McDonald's: globalization and food culture as social determinants of health in urban Bangladesh. Food, Culture and Society, 16(4), pp. 551-568. (doi:10.2752/175174413X13758634982010)

Johnston, B., Pringle, J. and Buchanan, D. (2016) Operationalizing reflexivity to improve the rigor of palliative care research. Applied Nursing Research, 31, e1-e5. (doi:10.1016/j.apnr.2015.10.010) (PMID:26620579)

Johnston, B., Lawton, S. and Pringle, J. (2015) 'This is my story, how I remember it': In-depth analysis of dignity therapy documents from a study of dignity therapy for people with early stage dementia. Dementia, (doi:10.1177/1471301215605629) (PMID:26378124) (Early Online Publication)

Inbadas, H. (2014) Spirituality in the Care of the Dying in India: A Historical-Cultural Exploration. In: 4th Global conference on Spirituality in the 21st Century, Prague, Czech Republic, 12-14 March 2014,

Zaman, S. (2013) A day in a Bangladeshi hospital. In: Guhathakurata, M. and Schendel, W. (eds.) The Bangladesh Reader: History, Culture, Politics. Series: The world readers. Duke University Press: Durham. ISBN 9780822353041

Richards, N. (2016) Assisted suicide as a remedy for suffering? The end-of-life preferences of British "suicide tourists". Medical Anthropology, (doi:10.1080/01459740.2016.1255610) (PMID:27845576) (Early Online Publication)

Whitelaw, A., Graham, N., Black, D., Cockburn, J. and Renwick, L. (2012) Developing capacity and achieving sustainable implementation in healthy ‘settings’: insights from NHS Health Scotland's Health Promoting Health Service project. Health Promotion International, 27(1), pp. 127-137. (doi:10.1093/heapro/dar038)

Richards, N. (2015) Dying to go to court: demanding a legal remedy to end-of-life uncertainty. In: Kelly, T., Harper, I. and Khanna, A. (eds.) The Clinic and the Court: Law, Medicine and Anthropology. Series: Cambridge studies in law and society. Cambridge University Press: New York. ISBN 9781107076242

Centeno, C., Lynch, T., Garralda, E., Carrasco, J. M., Guillen-Grima, F. and Clark, D. (2016) Coverage and development of specialist palliative care services across the World Health Organization European region (2005-2012): results from a European association for palliative care task force survey of 53 countries. Palliative Medicine, 30(4), pp. 351-362. (doi:10.1177/0269216315598671) (PMID:26231421) (PMCID:PMC4800456)

Clark, D. and Graham, F. (2011) Evolution and change in palliative care around the world. Medicine, 39(11), pp. 636-638. (doi:10.1016/j.mpmed.2011.08.014)

Colburn, B. (2015) Methods in ethics: Introduction. In: Methods in Ethics: The Virtual Issue of the Aristotelian Society 3. Series: Virtual Issue. The Aristotelian Society, pp. 19-23.

Zaman, S. and Nahar, P. (2011) Searching for a lost cow ethical dilemmas of doing medical anthropological research in Bangladesh. Medische Antropologie, 23(1), pp. 153-163.

Colburn, B. (2015) Authenticity and the third-person perspective. In: Levey, G. (ed.) Authenticity, Autonomy and Multiculturalism. Series: Routledge studies in social and political thought. Routledge: New York. ISBN 9781138845213

Johnston, B., Pringle, J., Gaffney, M., Narayanasamy, M., McGuire, M. and Buchanan, D. (2015) The dignified approach to care: a pilot study using the patient dignity question as an intervention to enhance dignity and person-centred care for people with palliative care needs in the acute hospital setting. BMC Palliative Care, 14, 9. (doi:10.1186/s12904-015-0013-3) (PMID:25883533) (PMCID:PMC4399754)

Zaman, S. (2010) Journeying with medical anthropology. In: Doing and Living Medical Anthropology: Personal Reflections. Series: Health, culture and society. AMB: Diemen, pp. 145-151. ISBN 9789079700257

Clark, D. (2013) Transforming the Culture of Dying: The work of the Project on Death in America. Oxford University Press: Oxford. ISBN 9780199311613

Woitha, K., Carrasco, J. M., Clark, D., Lynch, T., Garralda, E., Martin-Moreno, J. M. and Centeno, C. (2016) Policy on palliative care in the WHO European region: an overview of progress since the Council of Europe’s (2003) recommendation 24. European Journal of Public Health, 26(2), pp. 230-235. (doi:10.1093/eurpub/ckv201)

Ahmad, B., Fouad, F. M., Elias, M., Zaman, S., Phillimore, P. and Maziak, W. (2015) Health system challenges for the management of cardiovascular disease and diabetes: an empirical qualitative study from Syria. International Journal of Public Health, 60(S1), pp. 55-62. (doi:10.1007/s00038-014-0594-2) (PMID:25103457)

Johnston, B., Rogerson, L., Macijauskiene, J., Blaževičienė, A. and Cholewka, P. (2014) An exploration of self-management support in the context of palliative nursing: a modified concept analysis. BMC Nursing, 13, 21. (doi:10.1186/1472-6955-13-21) (PMID:25120381) (PMCID:PMC4129427)

Nilsson, J., Grafström, M., Zaman, S. and Kabir, Z. N. (2005) Role and function: aspects of quality of life of older people in rural Bangladesh. Journal of Aging Studies, 19(3), pp. 363-374. (doi:10.1016/j.jaging.2004.07.006)

Lynch, T., Connor, S. and Clark, D. (2013) Mapping levels of palliative care development: a global update. Journal of Pain and Symptom Management, 45(6), pp. 1094-1106. (doi:10.1016/j.jpainsymman.2012.05.011)

Clark, D., Armstrong, M., Allan, A., Graham, F., Carnon, A. and Isles, C. (2014) Imminence of death among a national cohort of hospital inpatients. Palliative Medicine, 28(6), pp. 474-479. (doi:10.1177/0269216314526443) (PMID:24637342)

Gardiner, C., Gott, M., Ingleton, C. and Richards, N. (2013) Palliative care for frail older people: a cross-sectional survey of patients at two hospitals in England. Progress in Palliative Care, 21(5), pp. 272-277. (doi:10.1179/1743291X12Y.0000000043)

Inbadas, H. , Gillies, M. and Clark, D. (2016) Scottish Atlas of Palliative Care. University of Glasgow: Glasgow. ISBN 9780852619513

Colburn, B. (2013) Autonomy and end of life decisions: a paradox. In: Räikkä, J. and Varelius, J. (eds.) Adaptation and Autonomy: Adaptive Preferences in Enhancing and Ending Life. Series: Studies in applied philosophy, epistemology and rational ethics (10). Springer: Berlin, Germany, pp. 69-80. ISBN 9783642383755 (doi:10.1007/978-3-642-38376-2_5)

Inbadas, H. , Seymour, J. and Narayanasamy, A. (2014) Principles of Spiritual Care in End-Of-Life Care in India: A Historical-Cultural Investigation. In: 10th Palliative Care Congress, Harrogate, UK, 12-14 March 2014, (doi:10.1136/bmjspcare-2014-000654.48)

Hill, C., Whitelaw, A. and Stokes, P. (2010) 'Older people for older people' toolkit: developing social enterprise and service delivery in remote and rural areas. Project Report. University of Glasgow: Crichton Publications, Dumfries, UK.

Lynch, T., Centeno, C., Rocafort, J., Donea, O. and Clark, D. (2012) A pan-European survey on palliative care development from an EAPC Task Force. European Journal of Palliative Care, 19(5), pp. 232-236.

Johnston, B., Larkin, P., Connolly, M., Barry, C., Narayanasamy, M., Östlund, U. and McIlfatrick, S. (2015) Dignity-conserving care in palliative care settings: an integrative review. Journal of Clinical Nursing, 24(13-14), pp. 1743-1772. (doi:10.1111/jocn.12791) (PMID:25706903)

Papadopoulou, C., Johnston, B. and Themessl-Huber, M. (2016) Decay, transformation, and growth: meaning-making processes of patients with acute leukemia within the first year after diagnosis or relapse. Oncology Nursing Forum, 43(2), E73-E81. (doi:10.1188/16.ONF.E73-E81) (PMID:26906141)

Joarder, T., Cooper, A. and Zaman, S. (2014) Meaning of death: an exploration of perception of elderly in a Bangladeshi village. Journal of Cross-Cultural Gerontology, 29(3), pp. 299-314. (doi:10.1007/s10823-014-9237-6) (PMID:24962877)

Hill, C. and Whitelaw, A. (2012) Supporting Older People Affected by Cancer: A Community Development Approach. Project Report. NHS Cumbria, Dumfries. (Unpublished)

Warren, L. and Richards, N. (2012) 'I don’t see many images of myself coming back at myself': representations of women and ageing. In: Ylänne, V. (ed.) Representing Ageing: Images and Identities. Palgrave Macmillan: New York, pp. 149-169. ISBN 9780230272590

Zaman, S., Inbadas, H. , Whitelaw, A. and Clark, D. (2017) Common or multiple futures for end of life care around the world? Ideas from the ‘waiting room of history’. Social Science and Medicine, 172, pp. 72-79. (doi:10.1016/j.socscimed.2016.11.012) (PMID:27894008) (PMCID:PMC5224187)

Romdhane, H. B., Tlili, F., Skhiri, A., Zaman, S. and Phillimore, P. (2015) Health system challenges of NCDs in Tunisia. International Journal of Public Health, 60(S1), pp. 39-46. (doi:10.1007/s00038-014-0616-0) (PMID:25399240)

Richards, N. (2014) The death of the right-to-die campaigners. Anthropology Today, 30(3), pp. 14-17. (doi:10.1111/1467-8322.12110)

Kilic, B., Phillimore, P., Islek, D., Oztoprak, D., Korkmaz, E., Abu-Rmeileh, N., Zaman, S. and Unal, B. (2014) Research capacity and training needs for non-communicable diseases in the public health arena in Turkey. BMC Health Services Research, 14, 373. (doi:10.1186/1472-6963-14-373) (PMID:25193671) (PMCID:PMC4165910)

Richards, N. (2012) The fight-to-die: older people and death activism. International Journal of Ageing and Later Life, 7(1), pp. 7-32. (doi:10.3384/ijal.1652-8670.11153)

Inbadas, H. (2015) Encountering and Engaging with Suffering. In: Influence, Innovate and Integrate: 22nd International Conference of the Indian Association of Palliative Care, Hyderabad, India, 13-15 Feb 2015,

Johnston, B., Gaffney, M., Pringle, J. and Buchanan, D. (2015) The person behind the patient: a feasibility study using the patient dignity question for patients with palliative care needs in hospital. International Journal of Palliative Nursing, 21(2), pp. 71-77. (PMID:25715162)

Inbadas, H. (2015) Integrating Spiritual Care in Palliative Care: a Global Perspective. In: Global Perspectives for Palliative Care; Integration and Health Systems Strengthening, Edinburgh, UK, 19 June 2015,

Richards, N. (2013) Rosetta life: using film to create ‘bearable fictions’ of people’s experiences of life-limiting illness. In: Aaron, M. (ed.) Envisaging Death: Visual Culture and Dying. Cambridge Scholars Publishing: Newcastle, pp. 190-205. ISBN 9781443849265

Whitelaw, A., Teuton, J., Swift, J. and Scobie, G. (2010) The physical activity - mental wellbeing association in young people: A case study in dealing with a complex public health topic using a ‘realistic evaluation’ framework. Mental Health and Physical Activity, 3(2), pp. 61-66. (doi:10.1016/j.mhpa.2010.06.001)

Johnston, B. (2014) Palliative home-based technology from a practitioner's perspective: benefits and disadvantages. Smart Homecare Technology and TeleHealth, 2, pp. 121-128. (doi:10.2147/SHTT.S42687)

Johnston, B. and Narayanasamy, M. (2016) Exploring psychosocial interventions for people with dementia that enhance personhood and relate to legacy- an integrative review. BMC Geriatrics, 16, 77. (doi:10.1186/s12877-016-0250-1) (PMID:27044417) (PMCID:PMC4820853)

Gott, M., Frey, R., Robinson, J., Boyd, M., O'Callaghan, A., Richards, N. and Snow, B. (2013) The nature of, and reasons for, 'inappropriate' hospitalisations among patients with palliative care needs: a qualitative exploration of the views of generalist palliative care providers. Palliative Medicine, 27(8), pp. 747-756. (doi:10.1177/0269216312469263) (PMID:23295813)

Johnston, B. (2014) Is effective, person-centred, home-based palliative care truly achievable? Palliative Medicine, 28(5), pp. 373-374. (doi:10.1177/0269216314529858) (PMID:24756220)

Maguire, R. et al. (2015) Development of a novel remote patient monitoring system. Cancer Nursing, 38(2), E37-E47. (doi:10.1097/NCC.0000000000000150) (PMID:24836956)

Biswas, P., Nahar Kabir, Z., Nilsson, J. and Zaman, S. (2006) Dynamics of health care seeking behaviour of elderly people in rural Bangladesh. International Journal of Ageing and Later Life, 1(1), pp. 69-89. (doi:10.3384/ijal.1652-8670.061169)

Cameron, D. and Johnston, B. (2015) Development of a questionnaire to measure the key attributes of the community palliative care specialist nurse role. International Journal of Palliative Nursing, 21(2), pp. 87-95. (doi:10.12968/ijpn.2015.21.2.87) (PMID:25715164)

Alexander, J., Inbadas, H. and Braganza, D. (2005) Perceptions on Truth Telling in Palliative Care. In: 1st National Bioethics Conference, Mumbai, India, 25-27 Nov 2005,

Gysels, M., Johnston, B., Bausewein, C., Petkova, H. and Murtagh, F. E.M. (2015) What influences the place of care and death in people with advanced dementia? European Journal of Palliative Care, 22(2), pp. 58-63.

Johnston, B., Lawton, S., McCaw, C., Law, E., Murray, J., Gibb, J., Pringle, J., Munro, G. and Rodriguez, C. (2016) Living well with dementia: enhancing dignity and quality of life, using a novel intervention, dignity therapy. International Journal of Older People Nursing, 11(2), pp. 107-120. (doi:10.1111/opn.12103) (PMID:26710890)

Richards, N., Ingleton, C., Gardiner, C. and Gott, M. (2013) Awareness contexts revisited: indeterminacy in initiating discussions at the end-of-life. Journal of Advanced Nursing, 69(12), pp. 2654-2664. (doi:10.1111/jan.12151) (PMID:23600793)

Richards, N. M., Gardiner, C., Ingleton, C. and Gott, M. (2014) How do patients respond to end-of-life status? Nursing Times, 110(11), pp. 21-23.

Kilic, B., Kalaca, S., Unal, B., Phillimore, P. and Zaman, S. (2015) Health policy analysis for prevention and control of cardiovascular diseases and diabetes mellitus in Turkey. International Journal of Public Health, 60(S1), pp. 47-53. (doi:10.1007/s00038-014-0557-7) (PMID:24817009)

Clark, D. (2011) A history of the project on death in America: programmes, outputs, impacts. In: Conway, S. (ed.) Governing Death and Loss: Empowerment, Involvement and Participation. Oxford University Press: Oxford, pp. 81-88. ISBN 9780199586172

Richards, N. (2016) Euthanasia and policy: choosing when to die. In: Woodthorpe, K. and Foster, L. (eds.) Death and Social Policy in Challenging Times. Palgrave Macmillan: Basingstoke. ISBN 9781137484895

Whitelaw, A. (2012) The emergence of a 'dose-response' analogy in the health improvement domain of public health: a critical. Critical Public Health, (doi:10.1080/09581596.2012.682147)

Clark, D. (2012) Cultural considerations in planning palliative and end of life care. Palliative Medicine, 26(3), pp. 195-196. (doi:10.1177/0269216312440659)

Inbadas, H. (2014) Dignity and the Dead Body: An Indian Perspective [Invited Talk]. In: Dignity and the Human Body: The Post-mortem Treatment of the Body as an Ethical, Theological and Biblical Task, University of Nottingham, Nottingham, UK, 25 Oct 2014,

Wright, M. and Clark, D. (2012) Cicely Saunders and the development of hospice palliative care. In: Coward, H. and Stajduhar, K.I. (eds.) Religious Understandings of a Good Death in Hospice Palliative Care. Series: SUNY series in religious studies. State University of New York Press: Albany, N.Y.. ISBN 9781438442730

O'Brien, M.R. and Clark, D. (2012) Unsolicited written narratives as a methodological genre in terminal illness: challenges and limitations. Qualitative Health Research, 22(2), pp. 274-284. (doi:10.1177/1049732311420737)

Johnston, B., Coole, C., Narayanasamy, M., Feakes, R., Whitworth, G., Tyrell, T. and Hardy, B. (2016) Exploring the barriers to and facilitators of implementing research into practice. British Journal of Community Nursing, 21(8), pp. 392-398. (doi:10.12968/bjcn.2016.21.8.392) (PMID:27479853)

Richards, N. (2011) Promoting the self through the arts: the transformation of private testimony into public witnessing. In: Conway, S. (ed.) Governing Death and Loss. Oxford University Press: New York, pp. 45-53. ISBN 9780199586172

Warren, L., Gott, M., Hogan, S. and Richards, N. (2012) Representing Self-Representing Ageing: Look at Me! Images of Women and Ageing. Project Report. New Dynamics of Ageing, Sheffield.

Gott, M. et al. (2013) Transitions to palliative care for older people in acute hospitals: a mixed-methods study. Health Services and Delivery Research, 1(11), pp. 1-138. (doi:10.3310/hsdr01110)

Zaman, S. (2013) Silent saviours: family members in a Bangladeshi hospital. Anthropology and Medicine, 20(3), pp. 278-287. (doi:10.1080/13648470.2013.827426) (PMID:24004293)

Richards, N. and Rotter, R. (2013) Desperately seeking certainty? The case of asylum applicants and people planning an assisted suicide in Switzerland. Sociological Research Online, 18(4), (doi:10.5153/sro.3234)

Inbadas, H. (2016) History, culture and traditions: the silent spaces in the study of spirituality at the end of life. Religions, 7(5), 53. (doi:10.3390/rel7050053)

McKeown, K., Haase, T., Tworney, S., Clark, D., Taylor, M. and Watson, M. (2011) A comparison of how relatives, nurses and doctors perceive end-of-life care in Irish hospitals. Journal of Palliative Care, 26(3), pp. 236-237.