The Glasgow Office for Rare Conditions

A rare condition is defined by the European Union as one that affects less than 1 in 2000 of the general population.   There are between 6000-8000 known rare conditions and approximately 7% of the population will be affected by such a condition at some point in their lives.   It is estimated that every year, around 10,000 children with a rare condition will attend the Royal Hospital for Children (RHC).

The Glasgow Office for Rare Conditions, sited in Child Health, works with RHC Glasgow, at improving the standards of health care and research in those with rare conditions.

For further information, please contact Liz Dougan, Project Manager, Glasgow Office for Rare Conditions.