The Glasgow Office for Rare Conditions
A rare condition is defined by the European Union as one that affects less than 1 in 2000 of the general population. There are between 6000-8000 known rare conditions and approximately 7% of the population will be affected by such a condition at some point in their lives. It is estimated that every year, around 10,000 children with a rare condition will attend the Royal Hospital for Children (RHC).
For further information, please contact Liz Dougan, Project Manager, Glasgow Office for Rare Conditions.