Rules and Responsibilities

Rules and Responsibilities

Use of the registry is subject to certain rules and responsibilities constituting fair usage and protecting the rights of patients whose details are contained within the registry, as well as the clinicians. In summary these include:

  • Only summary patient information allowing potential collaborations will be held in the registry; detailed information that could allow identification will not be held.
  • Users will only be allowed to browse the registry following approval from the Steering Committee.
  • Users should only log on with their username.
  • Audit tracking software monitors access patterns, machine locations and user IDs. With this information it is possible to accurately track and identify any illegal usage.
  • All information stored in the registry, and access to that information, conforms to the UK Data Protection Act (1998).

Privacy Policy

  • The I-DSD registry uses audit tracking software which monitors access patterns, machine locations and user IDs. With this information, it is possible to accurately track and identify any illegal usage. The Registry shall store some user information so that it can act as a register of users, and will log the user's IP address, which is automatically recognised by the web server. The website and server logs are hosted by the IT Services at the University of Glasgow using private, TLS-encrypted web browser sessions, and the IP information is accessed through tools provided by Google Analytics. We shall not use cookies for collecting user information from the site and will not collect any information about users except that required for conducting research within the consortium, enforcing consortium privacy rules, or for system administration of the registry.

 

Access the I-DSD registry