Patient Information Sheets & Consent Forms

The I-DSD registry operates an Opt-In policy for consent for patients to be included in the Registry (see SOP v4.0, item 3.3). Please use the patient information sheets and consent forms according to the country/language relevant to your centre. Local or national ethical approval may be required in some countries.  Please consult ethical advisors in your region. Translations of the I-DSD information sheets in other languages are available in this repository.  

I-DSD (English)

I-DSD (Arabic)

Argentina

Belgium

Brazil

 Bulgaria

China

Egypt

France

Germany

 ‌Israel

Italy

Morocco

Netherlands

Poland

Russia

Romania

Spain

Switzerland

Turkey

Ukraine

 

I-CAH Registry Patient Information Sheets

I-CAH Information sheet Adult & Consent form

I-CAH Information sheet Child

I-CAH consent form

The Patient Information Sheets have been approved by the West of Scotland Research Ethics Committee.

Word versions available upon request from the Registry Manager, Jillian.Bryce@glasgow.ac.uk