Unreached: The Impact of Financial Hardship and Deprivation on End of Life Experience in Rural Scotland (2024-25)
Rural and island residents face unique challenges in relation to accessing healthcare resources, even more so when they are experiencing end-of-life care. This qualitative research project explores the impact of deprivation on this already complex picture, and the resources (formal and informal) that support these individuals.
Overview
Rural residents experience unique challenges in relation to end-of-life care, such as extended travel distances, limited healthcare resources, and profound isolation, which can severely impact access to care and support.
We aim to expand the understanding of how rural contexts influence end-of-life care and to understand the perceived need for information and support, and explore the availability and accessibility of community and peer support.
Method
20-30 qualitative interviews with individuals living with serious advanced illness and their carers in rural and island communities. Interviews are being conducted face-to-face, by phone, and online. These interviews are designed to capture the day-to-day experiences, coping mechanisms (both practical and emotional), and the financial costs incurred.
Findings
Fieldwork is still ongoing. Initial analysis of early interviews highlighted the following:
- Financial burdens were discussed, both in relation to cost of heating and energy (electricity, wood and oil) but also the additional costs associated with accessing healthcare. Often, island residents were required to attend the mainland for treatment, which required expensive transportation including taxis, planes or ferries.
- The Motability scheme, which supports people with disabilities to achieve greater independence by providing access to affordable mobility (including cars, scooters, wheelchairs), was crucial in enabling individuals to shop, attend medical appointments, and maintain a level of autonomy despite their challenging circumstances.
Funder
Marie Curie
Research team
Dr Naomi Richards and Dr Sam Quinn, End of Life Studies Group