ICAMS representation at SSRN 'World Stroke Day' event
Legend for photograph: Speakers at the SSRN event(L to R),
Dr Terry Quinn (ICAMS); Ms Bridget Davis (GCU); Dr Satu Baylan (IHWB);
Mrs Theresa Clancy (Patient and carer representative); Prof Jesse Dawson (ICAMS)
The theme of the day was patient, public and carer involvement in research. We were delighted and humbled to welcome to the event over 60 people whose lives have been affected by stroke. We were also pleased to be joined by representatives from the British Heart Foundation, Chest Heart and Stroke Scotland, The Stroke Association and Chief Scientist Office.
Professor Jesse Dawson, the NRS Stroke Research Champion, opened proceedings with an overview of recent research achievements in Glasgow, the audience were particularly interested in his pioneering work around new technology to augment rehabilitation. Dr Terry Quinn (chair of the SSRN patient involvement group) then discussed the changing landscape of stroke research, moving from a model of ‘doing research to patients’ to ‘doing research with patients’. Terry discussed how stroke survivors were helping with many aspects of his program of work around post stroke cognitive decline, from setting the questions to interpreting the results.
Events such as this are an excellent way of disseminating research to a lay audience. Terry went on to describe the other avenues we are using to improve visibility of Glasgow stroke research with a particular focus on podcasts, blogs and other social media. For example, there is now an agreement with the AHA journal ‘Stroke’ that Terry’s monthly ‘Clinical Synopsis’ section will be accompanied by an online version written for a lay audience.
Active involvement of patients, carers and public can greatly improve a research project and is mandated by several clinical research funders and publishers. Increasingly, evidence of such engagement is also requested for pre-clinical research. Terry and the SSRN are happy to hear from other ICAMS researchers who want to know more about any aspect of patient involvement in research.
First published: 19 December 2017