Office for Rare Conditions established in Glasgow
It is estimated that 10,000 children with rare conditions attend the Royal Hospital for Children in Glasgow each year. These children and their families, as well as the experts who look after them, have several common needs and the Office for Rare Conditions (ORC), launched in January 2017, aims to address these areas. Based at the Royal Hospital for Children and the Queen Elizabeth University Hospital Campus and funded through the Glasgow Children’s Hospital Charity, the ORC aims to work together with healthcare professionals across Glasgow to raise awareness of rare conditions, enhance the quality of care provided and promote participation in multi-centre research. Follow the ORC on Facebook or Twitter.
First published: 1 August 2017