I-DSD (International Disorders of Sex Development) is a registry of people born with rare medical conditions that affect their sex development as well as a registry of health care professionals and scientists with an interest in this field of medicine.

This international project helps researchers and clinicians learn more about the causes of disorders of sex development (DSD) and their effects on people’s lives. I-DSD supports research and conversations among all stakeholders – researchers, clinicians and patient advocates – to improve the quality of health care and quality of life for those affected by DSD


I-DSD/I-CAH Registries newsletter - Autumn 2016


Connect to the I-DSD Registry  (www.i-dsd.org)


I-DSD Registry